I saw a tattoo on Pinterest and the phrase caught my eye. "Your battle is my battle." I thought how well this applies when dealing with Cystic Fibrosis. Our son's battle with CF is 100% our battle too. We fight CF because we love our sons. We want Carter to have a full and long life, and for Jace to always have his big brother by his side. We fight for all other families with CF because we know how difficult, how time consuming, and how frightening it is to face such an unpredictable disease. We fight CF because we can't imagine just sitting back and letting CF win. Carter is our CF warrior, but it will always be our battle too.
Some of you know that over the last 6 months we have faced our strongest battles with CF yet. Starting in October, Carter started struggling with his health more than ever before, and it filled my heart with a real fear that I've never known before. My tears were often hidden after leaving doctor appointment after doctor appointment with frustrating news. Carter's lung function suddenly dropped to 56% and he was struggling to breathe like never before. Everything was causing him trouble, from asthma to several viruses and a bad lung infection. In the past 6 months, Carter has missed over 40 days of school, attended over 20 doctor appointments, had 3-4 hours of treatments daily, and has taken more medications than ever. I am so happy to report that in the past weeks, Carter seems to be bouncing back to his usual self and we are hopeful that this trend will continue. He is our inventive little thinker, always ready for a new adventure, and we don't want CF to hold him back.
Please click on the Great Strides Tab above or HERE to find more info about the walk, and to find our links to sponsor us or to walk with us. Thanks so very much!