Friday, May 23, 2014

Info for the 2014 Carter's Crew!

Please note that all Great Strides participants need to take the Park & Ride to Snow Valley as there are only limited spots at the site which are reserved for those with CF, and volunteers. Once again they will be chartering two Edmonton Transit City buses that will go between Century Park, located at 23rd Ave & 111th Street, to Snow Valley ski hill and back again.   Buses start rolling at 8:30 am & the last bus before the walk leaves Century Park at 10!  Buses start running again after the walk until 1:30.

Dave and I will be on site around 9am, and we strongly recommend that you plan to be there early.....especially if you have any cash/cheques/forms to turn in.  Please check in with us upon arrival to obtain your walk packages.  It is always a zoo trying to take a team picture, but we hope that we will be able to grab a team picture at some point before the walk......maybe 9:45ish?

What to bring:

  • your donation forms/money if you have offline donations
  • also consider a light coat, sunglasses, bug spray, sun lotion, camera, & good shoes.
There are no washrooms on the walk route, so please go before heading out.  There are no snack or water stations on route.  Please help yourself to a free bottle of water by the Lodge before starting. 

The trail is a packed dirt path, which can accommodate strollers/wagons.  There is one set of stairs where volunteers help those who need to carry these down the stairs.
If you guys take any great pictures at the walk, we would love to see them!  Please feel free to email to us!

In case you are wondering about the blue bandanas that you will see at the walk this year...this is a means of identifying those with CF.  Carter will be wearing one.  Those with CF are not required to wear one, but this will help us in a small way to be more aware and be able to keep Carter at a distance from others with CF (It is strongly recommended that those with CF are not in close contact for infection control). 


8:30-10:00am - Park & Ride to Snow Valley
9:00-10:30am - Registration; In Snow Valley Lodge
10:00am - announcements
10:15am - Warm up (Zumba!)
10:30-11:30 5km walk
11:30-1:30pm Park & Ride to Century
11:45am-12:45pm Lunch is served! Make sure
your wristband is on!!!
Short Program (once everyone is back and has had a chance to get their food! Around noon.)
11:30-1:30 Entertainment is booked for the kids

Whew!  Hope I didn't forget anything.  Any questions, give us a call/email.  See you Sunday!

Friday, March 28, 2014

Your Battle is My Battle

I saw a tattoo on Pinterest and the phrase caught my eye.  "Your battle is my battle."  I thought how well this applies when dealing with Cystic Fibrosis.  Our son's battle with CF is 100% our battle too. We fight CF because we love our sons.  We want Carter to have a full and long life, and for Jace to always have his big brother by his side. We fight for all other families with CF because we know how difficult, how time consuming, and how frightening it is to face such an unpredictable disease.  We fight CF because we can't imagine just sitting back and letting CF win.  Carter is our CF warrior, but it will always be our battle too.

Some of you know that over the last 6 months we have faced our strongest battles with CF yet.  Starting in October, Carter started struggling with his health more than ever before, and it filled my heart with a real fear that I've never known before.  My tears were often hidden after leaving doctor appointment after doctor appointment with frustrating news.  Carter's lung function suddenly dropped to 56% and he was struggling to breathe like never before.  Everything was causing him trouble, from asthma to several viruses and a bad lung infection.  In the past 6 months, Carter has missed over 40 days of school, attended over 20 doctor appointments, had 3-4 hours of treatments daily, and has taken more medications than ever.  I am so happy to report that in the past weeks, Carter seems to be bouncing back to his usual self and we are hopeful that this trend will continue.  He is our inventive little thinker, always ready for a new adventure, and we don't want CF to hold him back.

As we prepare to participate for our 7th year in the Great Strides Walk for CF, we are very thankful for the strong support that we always receive.  I can't say enough how very important your support is!  Maybe some see this as just another charity asking for money, but your help directly touches our hearts, and directly impacts our son's future.  This means so very much to our family.   There is so much hope on the horizon for more effective treatments that have the potential to make a huge difference!  Your generous support is the only way to make this happen.  Won't you please consider joining us this year...again, or for the first time?  We would be honored and humbled to have your support, and it really is easy to raise a few donations for a very worthy cause.  If you are unable to join us, your donations are greatly appreciated as well. You have the power to help change help give life. 

Please click on the Great Strides Tab above or HERE to find more info about the walk, and to find our links to sponsor us or to walk with us.  Thanks so very much!


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