Thursday, April 19, 2012

The Fight Goes On

This year has been rather overwhelming and exciting for our household. We have been doing major renovations to our little house….which in itself has been absolutely crazy, but awesome.  Carter is in Kindergarten, and loves it!  Jace, our sweet little two year old, has decided to become...let’s say, an extremely determined and busy child whose main ambition in life is to keep us on our toes and give us an abundance of grey hairs.
 
Cystic Fibrosis has been keeping us on our toes as well.  Over the past year, Carter has been struggling to breathe through his nose due to nasal polyps blocking his airways and causing havoc with his sinuses.  This has meant a lot more doctor appointments, treatments, and medications for him over the past 6 months.  In February, he had his first surgery to deal with this, and is heading in for surgery again in May.  Unfortunately, it is looking like he will have to have this surgery every 3-4 months.  Last week Carter had some temporary, but significant hearing loss, which was very concerning.  Apparently, the drainage of extra fluid in his ears can also be restricted due to those nasty polyps. 

I have to tell you that Cystic Fibrosis is a HORRIBLE disease that steals our time & our health. It steals opportunities that others can embrace without hesitation.  It’s a disease that can seem invisible because it wages its deadly war on the inside.  It can give us a sense of false security thinking that we have it under control, then turn in an instant and remind us that it is still very much there.

But it also makes us STRONG.
It makes us DETERMINED.
It makes us TENACIOUS as we fight for a cure.
AND it has taught us all about GRATITUDE.

We HATE CF, but refuse to let CF have more power by making us bitter.  We are watching CF shape our son into the most amazing little person full of love, trust, and acceptance.  It totally boggles us that throughout his first surgery, and in anticipation of his second, the only thing Carter has been concerned about is that they will use too much tape on his skin!  He is truly a remarkable child.

We LOVE that so many of you donate to CF every year on Carter’s behalf & we are so INSPIRED by those that step right up to help us fundraise year after year without hesitation.  We have been BLESSED to be able to experience some AMAZINGLY caring and selfless people, who warm our hearts with the extent of their hard work and kindness.  We HOPE & PRAY that all this hard work will result in new treatments to help Carter, & that they come in time to spare him of the pain and suffering that will be his future without them.

WE WILL ALWAYS KEEP FIGHTING CF, not only for our son, but for all of the others who are in this battle.  There are many families out there whose experiences with CF are far worse than anything that we have experienced.  Children are still dying; many others are waiting for life-saving transplants to replace their CF ravaged lungs. There are CF patients having to say goodbye to their loved ones as they take their final breaths.  This battle is not just about us.  Cystic Fibrosis is still the most common fatal, genetic disease in Canada.  Of the 63 patients that died in 2009, half were under 28 years old! 

Dave and I are are determined to be positive about Carter’s future.  We truly believe that the medical community is getting closer to finding effective control or a cure for this disease.  This fills us with HOPE, and an extreme desire to make sure this happens while our son is still in good health.

If you would like to be part of a really inspiring event, we invite you to  join Carter’s Crew at the Great StridesWalk for CF on May 27/12.  Bring your family, bring your friends….TOGETHER we can make a difference!  If you would like to show support by donating to Cystic Fibrosis, you can donate on Carter’s behalf by sponsoring him. To every person who steps forward to help us fundraise, or who donates...you hold a very special place in our hearts.
                              

With gratitude beyond measure,

Kim, Dave, Carter, & Jace

Carter's First Surgery

February 1, marked a first for Carter.  This was the day he underwent his first Sinus surgery to remove nasal polyps.  His nasal passages had become almost completely blocked, which caused him a lot of difficulty with eating, sleeping, and breathing in general!  My heart was squeezing so tight when I had to leave my brave little boy in the hands of the doctors and nurses and walk away.  Holding him while he was 'put under' and seeing the trust in his eyes just about undid me.  The waiting was pure agony!  We were so very happy to see him hours later and hear that it went well.

Unfortunately, he already has to have this surgery repeated in May, and it is quite possible that he will need this procedure redone every three to four months.  Although it could be much worse....it just rips my heart apart that he has to go through this...he is six years old!  Please keep praying for a cure to CF....

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