Thursday, April 28, 2011

Golf for a Cure

Golf for a Cure Poster 4

Sunday, April 17, 2011

New Experience for our Little Boys!

When Carter was a baby, we took him to the swimming pool 5-10 times...that was before he was diagnosed at 19 months.  It was glorious to have no fear, and no worries....a totally fun, and normal experience that most families take for granted.  However, when we first met with his CF Team, the doctors cautioned us regarding swimming for Carter.  His first doctor, told us that swimming in a lake would be more acceptable than a pool.  Then they switched him to a new doctor who told us that a pool is probably a better choice than a lake....but that he would prefer if we kept him out of pools until he was 5-6 years old.  We really had a difficult time with these opinions.  It made me so sad that such a normal activity that every child should enjoy....that had been a huge part of my childhood....was not recommended to be a part of Carter's childhood.
A big part of the issue is a nasty bacteria called Pseudomonas.  Pseudomonas, while it does not affect normal lungs, can cause nasty lung damaging infections in a person with Cystic Fibrosis.  This bacteria can be found everywhere, but especially where it is wet or moist.  It is often a difficult bacteria to get rid of and usually means extra treatments of nebulized antibiotics added to the normal demanding routine.

Carter is now five years old.  Throughout the years since his diagnosis, he has only played in lakes.  However, the opportunity arose for us to participate in our church's pizza/swimming night at our local pool, and we decided it was time.  So last night, I'm excited to say...we took our boys swimming!  Carter had a blast, of course! He absolutely loved it, and was sad to leave.  It was also a first time for our 15 month old son, Jace.  He had no fear, and enjoyed himself immensely as well.

It felt great to go out with our family and friends.  I can't say that I felt totally relaxed...but it will get better.   One day, maybe I won't notice the drops of pool water that Carter swallows, and wonder what nasty things could be growing in it.  Meanwhile, it was satisfying to see the joy on both of my son's faces, and to be able to share this 'first' with them.  Hopefully, it is the first of many more family swim nights!

If you want to join with us in the fight against CF, please check out the Great Strides Walk page to join Carter's Crew or sponsor Carter. You can also check out the 2011 Events page, and help us by attending, or spreading the word about our upcoming fundraisers.  Thank you!

Tuesday, April 12, 2011

Spring at the Driving Range

Well, our Driving Range has been open for a week now!  It is crazy how fast that sneaks up on us every year.  We have a tentative date of May 14 in mind for our 4th Annual Golf for a Cure.  More details to come.  You can keep up with our range by liking our new Lone Spruce Driving Range facebook page.  Watch for coupons, specials, and exclusive deals for facebook fans to come.  It is going to be a great season!  Come hit a bucket of balls, and enjoy the sunshine! 

Monday, April 4, 2011

Fundraiser Update!

Wow!  Our CF fundraiser "The Great Adventure" went by in such a blur yesterday!  It was an amazing day of hard work, and adrenaline!  Yet in the midst of all the chaos, I was overwhelmed by the huge show of support.  We are blessed to have FANTASTIC friends....seriously blessed.

The event started at 2:00 with our Scavenger Hunt participants meeting at the hall for the big send-off.  I'm not even sure yet how many teams we ended up with, but I am guessing at somewhere between 20-25 teams of 3-6 people.  When we said "Go", it was a good thing we were standing out of the way of the stampede that followed!

Apparently, we had enough items on the hunt list, because no one came back until right near the end time.  From the sounds of it, everyone had a lot of fun, which made us happy!

The meal....well, if you had seen the kitchen activity preparing to get the meal would have been in awe.  The meal was totally prepared by volunteers, and directed by my friend/fundraiser partner Colleen.  For about 20 minutes, it was a crazy rush....okay, it was an insane chaos of organized madness!  In the end, the meal was a great success! (and hours later when I was able to eat was super yummy!)

The part I was dreading in the little speech...ended up okay.  It is sure tough to speak about something so close to your heart.  In fact, my heart just breaks each time I have to say "my son has Cystic Fibrosis" out loud.  It is like reliving a horrible nightmare over and over. Even though we are used to dealing with CF daily, I don't think the news we received that horrible day will ever get old.  However, I wanted to help people understand how much CF needs their support and how grateful we are for their support, so I stumbled through it with a shaky voice but without a complete meltdown! My hubby had the great idea to show " Getting Nosey About CF with Oli & Nush " to help explain CF.  It helped me to avoid words that I didn't want to use (like fatal, life expectancy, age of survival) in front to my five year old son. That would have opened up a whole lot of confusion, and questions from him that I am not yet prepared to face. 

The evening ended with everyone heading over to Grandin Theatres to watch the movie "Tangled" with their families.  I only caught the last ten minutes, but everyone seemed to enjoy it. 

During the meal, and after, my awesome friends & family totally overwhelmed me.  We had our group of great volunteers in place to help with the evening of course.  But out of every corner, friends & family who were supposed to be just enjoying the event were jumping up like crazy to pitch in!  People were helping to serve drinks, clear tables, do dishes, pack up leftover food, clean, and haul our boxes out to the cars.  It saved our small group of volunteers a lot of extra time, really warmed my heart, and filled me with immense amounts of gratitude!

My only big regret from the whole event was that we were just too busy to take any pictures.  Thankfully, Saint City News, and SNAP came by and took some...I am looking forward to seeing them.

The St. Albert Kinsmen were amazingly supportive, our sponsors were generous, and the crowd was a group of fabulous people!   We are happy to have a God that guides our steps, and has our back:)

In the end, our event went very well, and raised over $2300 for Cystic Fibrosis Canada!


P.S. If you are planning to walk with Carter's Crew on May 29, please sign up asap.  We are ordering the team shirts this week:)  Go to the Great Strides page for more details.

Sunday, April 3, 2011

Today is the DAY!

The day is finally here!  "The Great Adventure" fundraiser for CF starts at 2:00, and our tickets are sold out!

For those lucky enough to have tickets, meet at the Kinsmen Banquet Centre (47 Riel Dr.), ready to have some fun! Prepare to do a little shopping at our great silent auction too.  Now, I have to go and face this's going to be a crazy, hectic, emotional, and fantastic day!


Related Posts Plugin for WordPress, Blogger...