Monday, November 29, 2010

Counting Down!

Finally!  My hubby is about 30 minutes from getting home from his 4 day snowmobiling holiday!  I am so excited to have him home and have the company of an adult (lol....kind of use that term loosely!)  I am in awe of single moms, more than ever....how on earth do they keep their sanity?  It is hard work being the sole person in charge of everything!

Jace, my 10 month old, has been teething like crazy...not a happy little dude.  He chews on everything!  His new love this evening has been Carter's nebulizer tubing.
Carter was a pretty good kid this weekend...other than being a lot more hyper these days.  I'm still blaming the increase in his Ventolin dosage.

It's time to do Carter's physio about now.  Jace is wanting up already.  It may just be one of those sessions where Jace sits on top of Carter on my lap, pulling my hair and sucking his thumb, while I "paddle" away at Carter's precious little lungs.
  

Sunday, November 28, 2010

SUNDAY'S CYSTIC SITES

CARSTAR AUTOMOTIVE  All facebook users!  Here is a great company supporting CF!  For every "like" that they get on their facebook page...they are donating $1 to the Canadian Cystic Fibrosis Foundation...up to $10,000! and if they reach that goal, they will donate an extra $5000!  At the moment they are up to about 6320 people that "like" their page.  This is SO EASY...just the click of a button.  Please participate, and spread the word.

Just the one site this week.  It has been another crazy week!  My hubby has been out of province snowmobiling for the past three days leaving me with no spare time.  One grumpy teething baby, water problems, Christmas decorating, and the chaos of normal life in general...well, you end up with just one site.  Believe me, I can't wait to get these munchkins in bed tonight!!

Wednesday, November 24, 2010

Weight Watching Wednesday - WEEK 4

Click HERE to see what this is all about!


WEEK FOUR!

Kim
Pounds still to lose: 9
Pounds lost/gained this week: -2.5!
Total Pounds LOST: 6 

My clothes are starting to feel loose!  It is so true that "nothing tastes as good as thin feels!"  I am getting there.  The big challenge will be staying on track now that the holidays are so close...

(My hubby, Dave, is taking a break until further notice. It just seems pointless when he goes up and down the same couple pounds every week!)

Sunday, November 21, 2010

Pay it Forward - CF Family could use some kind hearts...

CF Family in need - Okay, just one Cystic Site to bring to your attention today.  I don't know this family, but came across this on twitter this morning, and it touched my heart. I wanted to bring it to your attention in case someone is able & willing to give help & kindness to this family in need.  Let's pay it forward...and be thankful for our blessings.

Sunday Cystic Siteless today...

This week was a crazy one, with not enough time to spend surfing for interesting sites...hence we are siteless this Sunday.  But I took some time to post some pics.

Who says nebs can't be fun?

Carter's little brother, Jace, and his mischievous grin.

My beautiful brown eyed boy...Carter.

Middle of night treatments.

Saturday, November 20, 2010

And so it continues...

Carter's cough is a stubborn one this time.  We've been doing 4 treatments/day for almost two weeks...that is 3 1/2 - 4 hours/day for my little man.  He is tired, I am tired.  This is one of the reasons we try to avoid colds so diligently.  It is just not fun for anyone.

I mentioned in my previous post that Carter's doctor increased his Ventolin neb dosage last Wednesday.  It seems that he has been coughing even more since then.  I'm assuming that means it is working better at opening his airways to cough all the stuff out.  I just wish he would cough hard enough to be more productive ...he tends to suppress his coughs to avoid gagging.

I am anxiously awaiting his latest throat swab results.  Amazingly, he has been clear of any growth in his lungs since early spring!  He has frequently been on antibiotics for Staph, so it has actually been a welcome relief.  It is amazing how much easier his schedule feels when you lose one antibiotic 3x/day.  However, it has been feeling too good to be true.  The nurse made sure she got a very good swab this time...we'll see what they find.

Carter is being his usual trooper self.  No complaints.  He is loving the fact that we now have enough snow to play in.  He is looking forward to having his grandma over tonight to take care of him and his brother.  Dave and I actually get to go out to a Spaghetti dinner fundraiser for a friend's daycare.  I am hoping I can actually eat a hot & relaxing meal since I will have no kids to tend to!  Woot! Woot! (Can you tell we don't get out much?)

Thursday, November 18, 2010

Really Praying Tonight

Ugh.  It is one of those nights.  The kind where I am praying and wishing with all of my heart that we had a cure for CF and for Carter.  It is 3:30 am...& we are doing an unplanned neb/physio session...even though I thought the midnight treatment was the last until morning. This is really going to hurt tomorrow.  But, I woke a little bit ago to hear Carter constantly coughing, and there is no way I could not get up and help him.  I just get visions in my mind of his clogged little lungs being damaged with all of the crap stuck in there.  He must feel such irritation when he is having trouble clearing them.  Yesterday, at his clinic appt. his Doctor increased his Ventolin dosage.  I am hoping that it helps us kick this cough/cold.  We are sitting here in the dark watching 'Comfy Couch' while Carter's nebulizer is finishing up.  He asked me to bring him a bowl in case he throws up.  His mucous often causes him to gag when he coughs, and he knows he might need it tonight.  Breaks my heart.   Really and truly.

Wednesday, November 17, 2010

Weight Watching Wednesday - WEEK THREE

Previously...
Weight loss with a 4 year old CFer in the house, combined with no will-power, just does not work!  Since my second son, Jace, arrived 9 1/2 months ago, it has been an ongoing struggle to lose the baby weight.   I eat when I'm stressed, eat when I'm tired (all the time!), and eat when I'm ...I just generally eat, and I'm always hungry.  The life of a CF mom is busy, and it can be tough to find time to pay attention to ourselves.  I thought I'd start Weight Watching Wednesday to hold myself accountable.  I need to do this to set a good example for my sons, & this is something I need to do for me!

My blog is still pretty new, but if anyone out there wants to join me on this challenge, you are more than welcome!  Comment, or link up below, so we can follow each others progress & be encouraged by each other.


WEEK THREE!

Kim
Pounds still to lose:  11.5
Pounds lost/gained this week:  0
Total Pounds LOST: 3.5
As you can tell from my lack of a loss this week...I really struggled.  Time was scarce, and we ended up eating out more than usual.  Carter's been sick which meant a lot more treatments and less sleep as well...I just lost some will-power this week!  Get ready though...next week I'll knock off a few more pounds:)

My Hubby is still hanging in on this challenge too. (He is starting to realize that his pepsi/choc.bar diet might not be working so well for him...) Here are his stats for this week...
Dave
Pounds still to lose:  34.5
Pounds lost/gained this week:+1
Total Pounds LOST: 0.5

Saturday, November 13, 2010

SUNDAY'S CYSTIC SITES

INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on. Have a look!

Fund-raising Ideas - There are thousands of fund-raising ideas on the internet.  However, I came across this list on the 'Wish for Wendy' site....they raise money for CF.  It is a great list of really practical and easy ideas.  I'm going to make use of a few for the upcoming Great Strides season!

Youngest Lung Transplant Recipient in Alberta   News story and video clip from earlier this year.

Healthpod  - A great option for keeping track of your child's health information in one cool book.

Wednesday, November 10, 2010

Weight Watching Wednesday - WEEK TWO

Previously...
Weight loss with a 4 year old CFer in the house, combined with no will-power, just does not work!  Since my second son, Jace, arrived 9 1/2 months ago, it has been an ongoing struggle to lose the baby weight.   I eat when I'm stressed, eat when I'm tired (all the time!), and eat when I'm ...I just generally eat, and I'm always hungry.  The life of a CF mom is busy, and it can be tough to find time to pay attention to ourselves.  I thought I'd start Weight Watching Wednesday to hold myself accountable.  I need to do this to set a good example for my sons, & this is something I need to do for me!

My blog is still pretty new, & I'm not sure if anyone out there wants to join me on this journey, but you are more than welcome!  Link up below, or use the comment area, if you wish, so we can follow each others progress & be encouraged by each other.

WEEK TWO!

Kim
Pounds still to lose:  11.5
Pounds lost/gained this week:  -3.5
Total Pounds LOST: 3.5

My hubby wanted in on this challenge too...although he has opted for a less noticable approach:)  (Really bugs me that his pepsi/choc.bar diet is working for him...) Here are his stats...


Dave
Pounds still to lose:  33.5
Pounds lost/gained this week: -1.5
Total Pounds LOST: 1.5

Tuesday, November 9, 2010

A Whole Bunch of Breakfast!

Carter ate FIVE waffles for breakfast....and a yogurt, and his homo milk.  I figured out that he got about 20 grams of fat from the magarine alone.  Breakfast is the meal that we can cram all of the fat/calories in that he needs.  It has always been his best meal.  We rotate between pancakes/waffles, hot flavoured oatmeal, and cold cereal.  For some reason, toast and eggs are unappealing to him...I don't blame him for the eggs, but I don't understand how a person doesn't like toast?  Lunch is usually useless in our house.  I have to strongly encourage Carter to eat a small amount.  He has taken to requesting a "lunch snack" instead of "lunch."  I guess his breakfast sustains him through the whole day!  By suppertime he usually eats an acceptable amount.  However, his bedtime snack is the time he becomes a ravenous eating machine once again.  It is normal for him to consume an applesauce cup (or 2), a yogurt, a couple of bearpaw cookies, some apple slices, and then complain that he is still hungry!!

Carter is going to be 5 in January.  He weighs 37 pounds, which is not bad....but it is a constant struggle for him to gain weight.  My husband and I were looking through some old pictures from Carter's babyhood the other day.  It is amazing, looking back, at how far he has come.
 The picture above was taken when Carter was 15 months old.  We thought it was strange that his belly would get so big after a meal...little did we know that this was a classic sign of CF.  Just 4 months later he would be labeled as being in the 'failure to thrive' category and sent for tests which would show Cystic Fibrosis.
 This is Carter a few months ago.  He's doing very well, and is your typical happy, full of energy little boy!  We are so thankful for the advancements in CF care, and it is our daily prayer that one day soon, we'll have a cure for our son.

Saturday, November 6, 2010

SUNDAY'S CYSTIC SITES

INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on. Enjoy!

The Bonnell Foundation- I talked about this site a few weeks ago. They have put together a beautiful calendar for CF.  I was excited to receive mine last week and it did not disappoint!  It is a high quality, inspirational calendar.  I strongly recommend ordering one for yourself.

Donate Your Car to CF  - Canadians can donate their old clunkers to CF at this site.

Famous People with CF -  Find a few more HERE

Severe lack of time this week left me scrambling for some sites at last minute this week. I don't know how the weeks pass so quickly. 
Driving home this evening, I noticed that there are quite a few homes with Christmas lights on already, and one with a Christmas tree!  That is always shocking to me to see it so early!  My rule has always been Dec. 1 for decorating, otherwise it just doesn't seem as special.  Just my thoughts...
Enjoy your Sunday!

Wednesday, November 3, 2010

Weight Watching Wednesday - Week One

Weight loss with a 4 year old son with CF in the house, a hubby who loves junk food, and a baby, combined with no will-power, just does not work!  Since my second son, Jace, arrived 9 1/2 months ago, it has been an ongoing struggle to lose the baby weight.   I eat when I'm stressed, eat when I'm tired (all the time!), and eat when I'm ...I just generally eat, and I'm always hungry.  The life of a CF mom is busy, and it can be tough to find time to pay attention to ourselves.  I thought I'd start Weight Watching Wednesday to hold myself accountable.  I need to do this to set a good example for my sons, & this is something I need to do for me!
My blog is still pretty new, & I'm not sure if anyone out there wants to join me on this journey, but you are more than welcome!  Link up below, or use the comment area, if you wish, so we can follow each others progress & be encouraged by each other.

So....
WEEK ONE!
Kim
Pounds to lose:  15
Pounds lost/gained this week:   0
Total Pounds LOST:  0

(After showing this post to my hubby....he wanted in on the challenge.  Heehee...this should be interesting!  Men are welcome too! So these are Dave's stats...)
Dave
Pounds to lose:  35
Pounds lost/gained this week:  0
Total Pounds LOST:  0

Tuesday, November 2, 2010

A Cure for A Cold?

A couple of really interesting articles are floating around this morning!  Can you imagine what this would mean to CF families everywhere? ...a lot less stress for one thing!  Take a look at these stories making news this morning.

I found this a good read as well....

We are almost back to normal health in our house....AMAZINGLY, Carter has not caught this cold!  I am extremely thankful for that.

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