You know, it has really hit me lately...the reality of our son's disease. Don't get me wrong, he's actually been doing very well this year! But I can see it. When he runs around without his shirt on, I can see the effects CF is having on his small body. From his chest & tummy, to his fingertips....it is there. At night, when he is asleep, I find myself placing my hands on top of his lungs, and praying for him and his little lungs with all of my might.
Some days, I find myself rushing Carter to get older and looking forward to all that is to come....and then I kick myself! The older he gets, the greater hold CF will have on him. I asked him the other day if he could just stay young forever for me. He said "That is not the way it works mommy...I have to grow!"
It really is a difficult thing for me to accept. As a mom, I look forward to seeing my children grow and reach for their goals. But, with Carter, I just can't help but wish that the future wouldn't come so quickly.
We need a cure!