Wednesday, September 29, 2010

Another Inspiring Story

Take a look at the news video clip below for another inspiring story of people giving of themselves to help fight CF.  So very cool :)

Firefighters climb stairs for CF.

Tuesday, September 28, 2010

We are BLESSED.

You know, I really have to admit something.  Before Carter was diagnosed with Cystic Fibrosis, we were clueless.  We were not only clueless about CF, but clueless about any of the health struggles that other families face.   I guess we had the "it'll never happen to us" mentality that just totally blocks out the heart wrenching desire to help.  We just went about our busy life feeling bad for those with problems, donating to charities here and there of course, but without much compassion.  My husband, Dave, and I have talked about this several times since our journey with CF began.  It actually fills us with shame.  Things have changed so much since then!  If we hear of any health issues with children especially...it is tough to keep the tears from flowing for them.  We now feel desire to be involved and make a difference.  When we donate to causes now, we do it because we really feel that it is important and want to help, not because we feel obligated.  Yes, our focus, is on CF. But our hearts are now with every child who has battles to face, that keep them from having the simple life that a child should. It is just so sad that it took us so long to open our hearts.

Now, with all of that said, I really want to tell you about a wonderful person who blessed us this past weekend.  Last May, we participated in our third annual Great Strides walk for CF.  It was an amazing success, with our team doing an outstanding job raising about $24,000!  We were fortunate enough to be able to offer a great prize of a helicopter ride from Delta Helicopters to the two team members who raised the most money.  The two that raised the most, were one of Carter's little friends, Kailey (and her family), as well as a friend from our church, Colleen.  The helicopter ride was scheduled for this past Sunday.  However, when I was trying to arrange the time with Colleen....she turned the tables on us.  She was adament that our son, Carter, should go in her place!  We've come to see what a super special person that Colleen is.  She is constantly helping, constantly giving, and she truely cares from her heart.  Thank you so much Colleen for donating this ride back to our son.  You can see in his face in the pictures below, the joy that it gave him, and for that we are extremely grateful.

My favorite Carter quote from the flight was "Mom, is that the Eiffel Tower?"


Above:  The University of Alberta Hospital where we go often for Carter's CF appointments.


Some people really know how to give!  We are so grateful to our team and for everyone who supports CF, and for everyone who has gone out of their way to give us support.  Thank you once again to Colleen, to the Metlin's, and a huge thank you for the wonderful ride to Delta Helicopters.  You are all the best!

video

Friday, September 24, 2010

Flash Me Friday

It is Flash Me Friday over at the Groettum Family Blog...
Today, I thought, I'd join in!
This is the view from our kitchen window on our farm near Edmonton, Alberta.

Below is our "Milk House."  My Great Aunts & Uncles that used to live here, built this cute little shed beside our house.  It is just used for storage now, but I often wish I could transform it into a little guest house...
 
Enjoy your Friday!

Wednesday, September 22, 2010

Bring on the Sun

After a very gloomy first view weeks of September....the sun is shining bright today!  This is such an improvement...I was starting to feel pretty gloomy myself!  It is a glorious first day of Fall.  Carter had a wonderful morning at preschool.  I had a successful shopping trip for myself, and Jace, in preparation for Jace's baptism this weekend.  Jace is now napping.  Carter is outside, smoothing out my flower beds with his trucks, & the hubby is bringing home lunch!  Yes, I am feeling positively positive today.  It is definitely a good one.  ENJOY!

Friday, September 17, 2010

The Dreaded Cold Season

YUP, It is definitely here.  The season that us CF mommies dread like the plague.  Our little son, Jace, picked up a cold....and has been leaking and sneezing/coughing like crazy.  Pretty safe to assume...we are ALL going to get it.  How can one escape it when everything he touches goes in his mouth, and his little fingers touch everything?

So I've been watching Carter...trying to keep him a bit farther away than usual from his brother...an impossible task!  We've been washing our hands a lot more.....and if you know us, you're probably thinking "how can you wash more than you already do?"  LOL!  At this point, Carter's been holding up well, although, his nose seems a bit drippy this morning.

Some people think we are being overprotective when we keep Carter from snotty noses, and sneezes etc.  But when Carter gets a cold it is actually a major issue, not to mention a total life interruption.  Not only is his health at risk from a simple cold, but everything gets disrupted.  His treatments usually take about two hours/day when he is healthy.  Well....when he is sick, we do treatments 4-6 times throughout the day and night.  This works out to about 4-5 hours each day.  It gets exhausting very quickly!  But, we have to keep pounding all of that extra mucus out of his lungs to avoid serious infections from settling in.  So I can paddle his little lungs until my arms are ready to fall off and then some, if it means keeping his lungs from infection and damage.
It can take him a long time to recover....& that is really tough for him to not see friends, and to have to miss his weekly classes!  Simple colds are not simple for Carter.  They mean extra treatments, extra medications, extra doctor visits, and lots of extra concern.

So please, now that we are in this dreaded season....
  • wash your hands often
  • cover your coughs/sneezes with your arm
  • don't spread your colds...please stay home!
Everyone will be healthier, and this mom (& CF mommies everywhere!) will be a lot less stressed!

Thursday, September 16, 2010

A Few of my FAVORITE things

Carter
I love when you say "I love you mom!" out of the blue
I love how you always 'need' a hug.
I love when you ask to be excused from the table and thank me for the meal.
I love your bright brown eyes.
I love how you always want to be blow-dried after your bath.
I love your total love for Pancakes!

Jace
I love your chubby little hands.
I love the twinkle in your eyes when you are about to smile.
I love how you screech when you are excited.
I love (even though I shouldn't) how you suck your little thumb!
I love seeing how much you adore your big brother.
I love your softness.

Just feeling the need to write about the things I'm loving about my little boys today.

Tuesday, September 14, 2010

Sunday, September 12, 2010

Learning to let go...THE BIG DAY!

Well, here it is again!  A totally frightening day for me tomorrow....the first day of a new season of pre-school for Carter.  It nearly kills me to leave him without my vigilent protection (or over-protection...whatever!).  Who else is going to monitor every cough, sniffle, and sneeze in the room...then shuffle him into a corner and cover him with hand sanitizer?
I've packed his supplies....hand sanitizer, enzymes, and water bottle...indoor/outdoor shoes, and clothes are laid out.  We'll need to be up by 6:30 to make it to pre-school for 9am!  That will cover one hour of treatments, breakfast, and getting ready.  Of course, with baby Jace to feed/dress etc, and myself....we should fly out the door just in time....if not frustratingly late!
Carter, on the other hand, is super excited!  He is so blissfully unaware of the concerns that are squeezing my heart tight with tension.  I am thankful for that.  He trusts...simple as that.  I should take a lesson from him...It is so hard to let go! 
As the wise saying goes..."Let go and let GOD"
So, I will be a brave trooper tomorrow...just like my brave little man.

Friday, September 10, 2010

Forever Young

You know, it has really hit me lately...the reality of our son's disease.  Don't get me wrong, he's actually been doing very well this year!  But I can see it.  When he runs around without his shirt on, I can see the effects CF is having on his small body.  From his chest & tummy, to his fingertips....it is there.  At night, when he is asleep, I find myself placing my hands on top of his lungs, and praying for him and his little lungs with all of my might.
 
Some days, I find myself rushing Carter to get older and looking forward to all that is to come....and then I kick myself!  The older he gets, the greater hold CF will have on him.  I asked him the other day if he could just stay young forever for me.  He said "That is not the way it works mommy...I have to grow!" 

It really is a difficult thing for me to accept. As a mom, I look forward to seeing my children grow and reach for their goals.  But, with Carter,  I just can't help but wish that the future wouldn't come so quickly. 
We need a cure!

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