Wednesday, December 22, 2010

Weight Watching Wednesday - WEEK EIGHT

December 22...I made it eight weeks without gaining....until now!   I do plan to enjoy this Christmas week in moderation, and hope to get through until after New Year's without gaining much more.  We have skating and sledding on the "to do" list this week, which will hopefully help! So, next Wednesday, I will give myself a break and not post, but the following week....back on the band wagon!

(You can click HERE to see week one!  I've been doing this on my own, but as always, if anyone else wants to join me, let me know...I'd love some company!)


Pounds still to lose: 7
Pounds lost/gained this week: +1
Total Pounds LOST: 8

Three days from Christmas, and we are all HEALTHY!  Thank you Lord!  Praying that all of you have a healthy and peace-filled Christmas too.  

Wednesday, December 15, 2010

Weight Watching Wednesday - WEEK SEVEN!

I am succeeding in my goal to lose weight and become more active!  I want to be active and healthy for my little man with CF so I can be a good example and have the energy to get out and be active with him!  I am also doing this for my 11 month old son, Jace.  He is going to need to be active and have self-discipline to keep a healthy weight in this house!

(You can click HERE to see week one!  I've been doing this on my own, but as always, if anyone else wants to join me, link up below, or comment!  I'd love some company!)


Pounds still to lose: 6
Pounds lost/gained this week: -1.5
Total Pounds LOST:9!!!

Woo hoo! I can't believe I managed to drop 1.5 this week....inspite of my newly acquired taste for Carter's little project!  If I can make it through Christmas without gaining, I'll be so excited!  Now if I can just get rid of the baby jelly belly....New Year Core classes here I come!

Tuesday, December 14, 2010

Christmas Cards...yikes.

I have to say, I am SOOOOO BEHIND!!   I don't think I've ever left the Christmas cards this late.  So, here I sit at the kitchen table surrounded by a mountain of cards...blogging:)  My problem is that I feel lost.  I had every one of my friends, family, and Great Strides supporters, listed in detail in the contacts of my iphone.  It was a beautiful list, complete with the correct spelling of children's names and birthdays....sigh.  My iphone was stolen a few months ago, and thrown in the garbage by a 6 year old.  No more awesome list of people to send cards to.  It just seems like a monumental task trying to pull all that info together once again.  (Especially, since the laptop I used this past Great Strides season also crashed permanently!) But it has to be done.  We are really wanting to make sure that the companies that took the time to generously support our Great Strides fund-raising know that we are still grateful, and that we wish them a wonderful Christmas.  I actually made our cards for mailing to these companies...simple but nice...I think anyhow!
(Special thanks to Heather Dehaas for taking the original picture...I wish it was a little more recent, we are definitely overdue for more pictures!  We added some Christmas to it using
The inside has this verse:

"In this season of giving,
our family is taking time to 
remember how you graciously supported
our son, Carter, by giving to 
The Canadian Cystic Fibrosis Foundation 
in the past year.
May the true meaning of the season bring peace 
to your heart this Christmas, and
may God bless you in the New Year.  
Merry Christmas!"

I'm sure many of you understand the deep appreciation that I feel for these companies, for taking the time to support CF when I'm sure they have endless donation requests.  It means so much to us, and every dollar that gets donated truly does give us hope.  Don't forget to keep good relationships with those that support CF!  Without them, we would have no hope for a cure for those we love so much.

Thursday, December 9, 2010

Perfect Christmas Project for Carter!

Today we tackled a cool little baking project that was just right for Carter.  He had so much fun, and they turned out so AWESOME!  We are going to make these for all his little friends.  They are called Pretzel Hugs, and we found the idea on the Echoes of Laughter of my new favorite blogs for great craft and baking ideas!  (You can go there to get detailed directions!)

Once the Hershey Hugs were softened, he pushed red/green smarties into the Hershey hug to top them off.
Then I made a nifty label, and bagged them up!  The back of the label says "Made by:" and then Carter signed his name.  The first batch went to Grandma, but there are definitely more bags of these being made up in the next few days!  (If anyone else does this project, I am more than happy to email the tag that I made to you and save you some time:))  Have a great night!

Water Woes

We live on a farm, so we get our water from a well.  Our well water is horrible...we are talking gray and smelly like rotten eggs awful.  It eats away at our fixtures and stains our bathtub, it tarnishes cheap metals.  Sounds lovely doesn't it?  It is a blessing that we are so used to the smell that we don't notice it anymore.  Because of this bad water, we have always had to have expensive water treatment systems to make it tolerable.  Sometimes they work, sometimes they don't.  A month or so ago, we became tired of having troubles with the system we had, so we had another company install another new system. 

We do not drink our water, but the quality is very important to us since we have our one son with Cystic Fibrosis, and an 11 month old baby that take baths/showers in it.  So imagine my frustration, that we are still having problems!!!  The new water system is installed in my mom's house next door...our water lines come from her house.  Her water is great now, ours still is not. We have lived with heavy chlorine in our water for several weeks now...trying to clean out the water lines with no luck. We even bought a new hot water tank to try to solve the smell issue. The latest consensus as of this morning is that we may have to retrench a new water line between our houses.  It is winter...the ground is already frozen.    Sigh.  We could get a cistern...but that brings a whole new set of problems. Guess I'll be taking a water sample to the lab to make sure our present water is at least bacteria free until spring.  It will be an amazing day when we can get city water!

Wednesday, December 8, 2010

Preschool Concert 2010

Carter's concert went very well this morning! I've never seen my son blush was super sweet!  Carter is the one in the red shirt.  (The pic is a bit blurry...I had squirming Jace in my arms.)

Weight Watching Wednesday - Week 6

Click HERE to see what this is all about!


Pounds still to lose: 7.5
Pounds lost/gained this week: -0.5
Total Pounds LOST: 7.5

Ugh...tough week with Christmas parties starting!  At least I still pulled off a little bit.  I had my first glass of wine in two years this past week...I sure enjoyed it!  No parties this coming week, so I really will have no excuse to not have a loss again next week.  (Except, I have to do a tiny bit of baking...)  I am feeling great!  I've dropped a size, and am fitting into a lot of my clothes again!

This morning, Carter has his last preschool before Christmas.  It is their Christmas concert this morning!  I can't wait to see how cute this to come hopefully.  Have a great day!

Monday, December 6, 2010

Those Darn Dark Circles.

Both my husband and I noticed today, that the dark circles under Carter's eyes are darker today.  What does this mean?  I am praying that he is not getting sick again.  Over the past few years I've come to associate it with his little body "fighting something."  I have no clue if that is right.  It is just one of those days where he 'looks' like a child with an illness....I HATE that so much.  My hubby actually asked me if there was a vitamin or something he could take to help with that.  Well, to my knowledge, no....but what do I know?  I am wondering if this happens with any other CF kids?  So today, I sent Carter for a nap...much to his dismay!  If he is fighting a bug, we are going to try all we can to squash it before it makes itself at home!

Wednesday, December 1, 2010

Weight Watching Wednesday - WEEK 5!

Click HERE to see what this is all about!


Pounds still to lose:8
Pounds lost/gained this week: -1
Total Pounds LOST:7

Not too much to jump for joy about this week...just one little pound.  Next week, watch for two pounds :) !  I am now at my pre-Jace weight...heading for my pre-Carter weight just 7 pounds away!

Have a happy Wednesday everyone!  I am taking Carter to preschool soon, and heading out to do a couple hours of shopping with my littlest man, Jace.

Monday, November 29, 2010

Counting Down!

Finally!  My hubby is about 30 minutes from getting home from his 4 day snowmobiling holiday!  I am so excited to have him home and have the company of an adult (lol....kind of use that term loosely!)  I am in awe of single moms, more than on earth do they keep their sanity?  It is hard work being the sole person in charge of everything!

Jace, my 10 month old, has been teething like crazy...not a happy little dude.  He chews on everything!  His new love this evening has been Carter's nebulizer tubing.
Carter was a pretty good kid this weekend...other than being a lot more hyper these days.  I'm still blaming the increase in his Ventolin dosage.

It's time to do Carter's physio about now.  Jace is wanting up already.  It may just be one of those sessions where Jace sits on top of Carter on my lap, pulling my hair and sucking his thumb, while I "paddle" away at Carter's precious little lungs.

Sunday, November 28, 2010


CARSTAR AUTOMOTIVE  All facebook users!  Here is a great company supporting CF!  For every "like" that they get on their facebook page...they are donating $1 to the Canadian Cystic Fibrosis Foundation...up to $10,000! and if they reach that goal, they will donate an extra $5000!  At the moment they are up to about 6320 people that "like" their page.  This is SO EASY...just the click of a button.  Please participate, and spread the word.

Just the one site this week.  It has been another crazy week!  My hubby has been out of province snowmobiling for the past three days leaving me with no spare time.  One grumpy teething baby, water problems, Christmas decorating, and the chaos of normal life in general...well, you end up with just one site.  Believe me, I can't wait to get these munchkins in bed tonight!!

Wednesday, November 24, 2010

Weight Watching Wednesday - WEEK 4

Click HERE to see what this is all about!


Pounds still to lose: 9
Pounds lost/gained this week: -2.5!
Total Pounds LOST: 6 

My clothes are starting to feel loose!  It is so true that "nothing tastes as good as thin feels!"  I am getting there.  The big challenge will be staying on track now that the holidays are so close...

(My hubby, Dave, is taking a break until further notice. It just seems pointless when he goes up and down the same couple pounds every week!)

Sunday, November 21, 2010

Pay it Forward - CF Family could use some kind hearts...

CF Family in need - Okay, just one Cystic Site to bring to your attention today.  I don't know this family, but came across this on twitter this morning, and it touched my heart. I wanted to bring it to your attention in case someone is able & willing to give help & kindness to this family in need.  Let's pay it forward...and be thankful for our blessings.

Sunday Cystic Siteless today...

This week was a crazy one, with not enough time to spend surfing for interesting sites...hence we are siteless this Sunday.  But I took some time to post some pics.

Who says nebs can't be fun?

Carter's little brother, Jace, and his mischievous grin.

My beautiful brown eyed boy...Carter.

Middle of night treatments.

Saturday, November 20, 2010

And so it continues...

Carter's cough is a stubborn one this time.  We've been doing 4 treatments/day for almost two weeks...that is 3 1/2 - 4 hours/day for my little man.  He is tired, I am tired.  This is one of the reasons we try to avoid colds so diligently.  It is just not fun for anyone.

I mentioned in my previous post that Carter's doctor increased his Ventolin neb dosage last Wednesday.  It seems that he has been coughing even more since then.  I'm assuming that means it is working better at opening his airways to cough all the stuff out.  I just wish he would cough hard enough to be more productive ...he tends to suppress his coughs to avoid gagging.

I am anxiously awaiting his latest throat swab results.  Amazingly, he has been clear of any growth in his lungs since early spring!  He has frequently been on antibiotics for Staph, so it has actually been a welcome relief.  It is amazing how much easier his schedule feels when you lose one antibiotic 3x/day.  However, it has been feeling too good to be true.  The nurse made sure she got a very good swab this time...we'll see what they find.

Carter is being his usual trooper self.  No complaints.  He is loving the fact that we now have enough snow to play in.  He is looking forward to having his grandma over tonight to take care of him and his brother.  Dave and I actually get to go out to a Spaghetti dinner fundraiser for a friend's daycare.  I am hoping I can actually eat a hot & relaxing meal since I will have no kids to tend to!  Woot! Woot! (Can you tell we don't get out much?)

Thursday, November 18, 2010

Really Praying Tonight

Ugh.  It is one of those nights.  The kind where I am praying and wishing with all of my heart that we had a cure for CF and for Carter.  It is 3:30 am...& we are doing an unplanned neb/physio session...even though I thought the midnight treatment was the last until morning. This is really going to hurt tomorrow.  But, I woke a little bit ago to hear Carter constantly coughing, and there is no way I could not get up and help him.  I just get visions in my mind of his clogged little lungs being damaged with all of the crap stuck in there.  He must feel such irritation when he is having trouble clearing them.  Yesterday, at his clinic appt. his Doctor increased his Ventolin dosage.  I am hoping that it helps us kick this cough/cold.  We are sitting here in the dark watching 'Comfy Couch' while Carter's nebulizer is finishing up.  He asked me to bring him a bowl in case he throws up.  His mucous often causes him to gag when he coughs, and he knows he might need it tonight.  Breaks my heart.   Really and truly.

Wednesday, November 17, 2010

Weight Watching Wednesday - WEEK THREE

Weight loss with a 4 year old CFer in the house, combined with no will-power, just does not work!  Since my second son, Jace, arrived 9 1/2 months ago, it has been an ongoing struggle to lose the baby weight.   I eat when I'm stressed, eat when I'm tired (all the time!), and eat when I'm ...I just generally eat, and I'm always hungry.  The life of a CF mom is busy, and it can be tough to find time to pay attention to ourselves.  I thought I'd start Weight Watching Wednesday to hold myself accountable.  I need to do this to set a good example for my sons, & this is something I need to do for me!

My blog is still pretty new, but if anyone out there wants to join me on this challenge, you are more than welcome!  Comment, or link up below, so we can follow each others progress & be encouraged by each other.


Pounds still to lose:  11.5
Pounds lost/gained this week:  0
Total Pounds LOST: 3.5
As you can tell from my lack of a loss this week...I really struggled.  Time was scarce, and we ended up eating out more than usual.  Carter's been sick which meant a lot more treatments and less sleep as well...I just lost some will-power this week!  Get ready week I'll knock off a few more pounds:)

My Hubby is still hanging in on this challenge too. (He is starting to realize that his pepsi/ diet might not be working so well for him...) Here are his stats for this week...
Pounds still to lose:  34.5
Pounds lost/gained this week:+1
Total Pounds LOST: 0.5

Saturday, November 13, 2010


INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on. Have a look!

Fund-raising Ideas - There are thousands of fund-raising ideas on the internet.  However, I came across this list on the 'Wish for Wendy' site....they raise money for CF.  It is a great list of really practical and easy ideas.  I'm going to make use of a few for the upcoming Great Strides season!

Youngest Lung Transplant Recipient in Alberta   News story and video clip from earlier this year.

Healthpod  - A great option for keeping track of your child's health information in one cool book.

Wednesday, November 10, 2010

Weight Watching Wednesday - WEEK TWO

Weight loss with a 4 year old CFer in the house, combined with no will-power, just does not work!  Since my second son, Jace, arrived 9 1/2 months ago, it has been an ongoing struggle to lose the baby weight.   I eat when I'm stressed, eat when I'm tired (all the time!), and eat when I'm ...I just generally eat, and I'm always hungry.  The life of a CF mom is busy, and it can be tough to find time to pay attention to ourselves.  I thought I'd start Weight Watching Wednesday to hold myself accountable.  I need to do this to set a good example for my sons, & this is something I need to do for me!

My blog is still pretty new, & I'm not sure if anyone out there wants to join me on this journey, but you are more than welcome!  Link up below, or use the comment area, if you wish, so we can follow each others progress & be encouraged by each other.


Pounds still to lose:  11.5
Pounds lost/gained this week:  -3.5
Total Pounds LOST: 3.5

My hubby wanted in on this challenge too...although he has opted for a less noticable approach:)  (Really bugs me that his pepsi/ diet is working for him...) Here are his stats...

Pounds still to lose:  33.5
Pounds lost/gained this week: -1.5
Total Pounds LOST: 1.5

Tuesday, November 9, 2010

A Whole Bunch of Breakfast!

Carter ate FIVE waffles for breakfast....and a yogurt, and his homo milk.  I figured out that he got about 20 grams of fat from the magarine alone.  Breakfast is the meal that we can cram all of the fat/calories in that he needs.  It has always been his best meal.  We rotate between pancakes/waffles, hot flavoured oatmeal, and cold cereal.  For some reason, toast and eggs are unappealing to him...I don't blame him for the eggs, but I don't understand how a person doesn't like toast?  Lunch is usually useless in our house.  I have to strongly encourage Carter to eat a small amount.  He has taken to requesting a "lunch snack" instead of "lunch."  I guess his breakfast sustains him through the whole day!  By suppertime he usually eats an acceptable amount.  However, his bedtime snack is the time he becomes a ravenous eating machine once again.  It is normal for him to consume an applesauce cup (or 2), a yogurt, a couple of bearpaw cookies, some apple slices, and then complain that he is still hungry!!

Carter is going to be 5 in January.  He weighs 37 pounds, which is not bad....but it is a constant struggle for him to gain weight.  My husband and I were looking through some old pictures from Carter's babyhood the other day.  It is amazing, looking back, at how far he has come.
 The picture above was taken when Carter was 15 months old.  We thought it was strange that his belly would get so big after a meal...little did we know that this was a classic sign of CF.  Just 4 months later he would be labeled as being in the 'failure to thrive' category and sent for tests which would show Cystic Fibrosis.
 This is Carter a few months ago.  He's doing very well, and is your typical happy, full of energy little boy!  We are so thankful for the advancements in CF care, and it is our daily prayer that one day soon, we'll have a cure for our son.

Saturday, November 6, 2010


INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on. Enjoy!

The Bonnell Foundation- I talked about this site a few weeks ago. They have put together a beautiful calendar for CF.  I was excited to receive mine last week and it did not disappoint!  It is a high quality, inspirational calendar.  I strongly recommend ordering one for yourself.

Donate Your Car to CF  - Canadians can donate their old clunkers to CF at this site.

Famous People with CF -  Find a few more HERE

Severe lack of time this week left me scrambling for some sites at last minute this week. I don't know how the weeks pass so quickly. 
Driving home this evening, I noticed that there are quite a few homes with Christmas lights on already, and one with a Christmas tree!  That is always shocking to me to see it so early!  My rule has always been Dec. 1 for decorating, otherwise it just doesn't seem as special.  Just my thoughts...
Enjoy your Sunday!

Wednesday, November 3, 2010

Weight Watching Wednesday - Week One

Weight loss with a 4 year old son with CF in the house, a hubby who loves junk food, and a baby, combined with no will-power, just does not work!  Since my second son, Jace, arrived 9 1/2 months ago, it has been an ongoing struggle to lose the baby weight.   I eat when I'm stressed, eat when I'm tired (all the time!), and eat when I'm ...I just generally eat, and I'm always hungry.  The life of a CF mom is busy, and it can be tough to find time to pay attention to ourselves.  I thought I'd start Weight Watching Wednesday to hold myself accountable.  I need to do this to set a good example for my sons, & this is something I need to do for me!
My blog is still pretty new, & I'm not sure if anyone out there wants to join me on this journey, but you are more than welcome!  Link up below, or use the comment area, if you wish, so we can follow each others progress & be encouraged by each other.

Pounds to lose:  15
Pounds lost/gained this week:   0
Total Pounds LOST:  0

(After showing this post to my hubby....he wanted in on the challenge.  Heehee...this should be interesting!  Men are welcome too! So these are Dave's stats...)
Pounds to lose:  35
Pounds lost/gained this week:  0
Total Pounds LOST:  0

Tuesday, November 2, 2010

A Cure for A Cold?

A couple of really interesting articles are floating around this morning!  Can you imagine what this would mean to CF families everywhere? ...a lot less stress for one thing!  Take a look at these stories making news this morning.

I found this a good read as well....

We are almost back to normal health in our house....AMAZINGLY, Carter has not caught this cold!  I am extremely thankful for that.

Sunday, October 31, 2010

Some Halloween Fun!

 No, Carter does not usually have a beard or such bushy eyebrows.  Everyone always says he is such a mini Dave....thought I'd emphasize the point.  My dear hubby actually shaved off his gotee this week...much to my dismay!  I decided to put it back on him!  If you haven't used, you should check it much fun to play with your pictures!
My beautiful boys....Carter (4 years old), and Jace (9 months old).
Okay, this was a pic of Jace and I halloweened out just for kicks!  Have a happy day everyone!


INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on.  Enjoy!  - My niece told me about this site...a search engine that donates a cent for every search to a charity of your choice.  Their are several CF charities to choose from! 

Trampoline as CF therapy- Interesting article written by a physiotherapist from Sweden in 2008.  In our home, we do use a trampoline to compliment therapy (not replace) for our son w/cf.  It often gets him coughing when nothing else works.

Recipe Ideas for CF kids  Check out these high calorie recipes.

Halloween Fundraiser - In the spirit of Halloween are a few halloween fundraisers that benefit CF.  Check out this Halloween Run

Thursday, October 28, 2010

Heading into a crazy winter...

It seems, that this year we are going to spend a lot of time sick!  Grrrrrr.  It makes me so MAD!  We've enjoyed a few weeks of health, and now we are getting sick in our home again.  It is virtually impossible to protect Carter from this!  So far, it is Jace and I fighting this bug, but it is inevitable that Carter will catch it.  It would be a miracle if he didn't.   I feel like I am constantly saying "go wash your hands," "don't touch your face," "don't get so close to your brother," ahhhhhhh! It is enough to drive a mom insane.  It is times like this when I wish we had a larger house so we had space to hang out in different rooms.  Sigh.....  I never thought simple colds would one day cause me so much stress.  Somedays it feels like nothing will ever be simple again.
Yesterday, a family aquaintance came by with a couple of adorable puppies.  She was on her way to take them to the pet store.  Sweet little husky/shepherd crosses.  My husband tried with all his might to convince me that we could have one.  We have an awesome German Shepherd "Yukon" already...he is 9 years old.  I stood my ground with almost panic in my on earth could I find any more time to deal with an outdoor puppy when we are heading into the snowy cold winter months?  The poor little thing would have to spend so much time by itself out there...penned up, and lonely.  Thank goodness my husband was understanding, and did not push the issue too far.  I can't tell you the relief I feel at not having that extra task to deal with or feel guilty about over the winter months....the frequently "sick" season.  Maybe in the spring, we could spend more time outside enjoying a puppy....

Some days, CF makes me SO VERY MAD!  This is one of those days.

Monday, October 25, 2010

Menu Monday

The BIG GOAL here is finding foods that fill up my little CFer with healthy high fat/calorie foods that he enjoys...& meanwhile allowing the rest of us to attain and maintain a healthy weight!  If we didn't "encourage" Carter to eat other foods, he would only eat vegetables and fruit.  It is a constant battle to get the calories into him and not so many into us!  I've found a variety of recipes that he enjoys, and we do too.  I'm really not sure if I can be organized enough to do this every week...but here is our family menu for this week!

with salad (full fat dressing for C...light for us), and rice (w/some margarine on C's)


Italian sausage/potatoes (still looking for a great casserole recipe...)

Crockpot Pork Chops
This is for 3-4 small pork chops (double the recipe for more) 
in crockpot put 1 can mushroom soup
add 1/4 to half the mushroom soup can of water
add half a package of dry onion soup mix add pork chops
cook in crockpot on low for about 6 hours 
serve with rice and pour mixture on top of rice!

+ Steamed veggies (w/margarine for C)

Eat out.

Sunday, October 24, 2010


INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on.  Enjoy!

CF Skin wrinkling in water - This I found very interesting!  I've always wondered about my son's excessive skin wrinkling after he came out of his bath...

Flashmob - Came across this awareness event....this short video clip brought a smile to my face.

CF Trivia Game - Try your hand at a little CF trivia.

A Wish For Taylor  - This is not CF related...but it really breaks my heart and actually makes me thankful that my son has CF...a disease with hope for a cure in his lifetime.  This story about little Taylor is unfolding here in Edmonton right now...she has cancer...and has been given only 6 months to live.  Join the Facebook Group here.
It is amazingly awesome how people from near and far are pulling together to make this a special time for her family.
Watch a recent News Clip

Sunday, October 17, 2010


INTERESTING CF SITES that I've discovered this week...anything from news articles, to cool fundraisers, merchandise for CF, and so on.  Enjoy!

The Bonnell Foundation - Check out their new CF Calendar for 2011!  I just emailed them to see if they will send one to me in Canada!  Looks awesome! (update:  They will send to Canada!)

Tiny Trinkets - Custom jewelry to help benefit CF. (Find CF pieces in the gallery at the bottom, or check out their facebook page here.)

Fundraising for a Cause - Angel Tac pins that you can sell as a fundraiser for CF. Check out the rest of this site for more items to promote CF!

Friday, October 15, 2010

Brotherly Love

It really warms my heart when I see how my boys are starting to interact with each other.  I love how Carter can talk to his baby brother and Jace's face will light up with pure adoration.  If ever I wondered about the decision we made to give Carter a sibling...I am confident now that we made the right choice.  Yes, it also means more germs hanging around for them to share....and share they do...there is no keeping them apart!  Little Jace has sometimes had to wait to be fed, or comforted until I could complete Carter's treatments.  The attention they get will not always be equal.  Then, there is also the horrid thought that has entered my mind that one day Jace may have to face the grief of losing his brother.  (Wow, instant tears popped into my eyes with that sentence.)
But, all of the worry disappears when I see them together.  They have so much love for each other, and that is a great gift.  We've given Carter more JOY.  Whether, CF steals him from us early, or if he lives to 100...he has one more person to stand by his side and fight for a cure, and he'll always know how immensely he is loved.

Sunday, October 10, 2010

October 10

Today is October 10.  It has been three years since my sweet dad lost his long battle with cancer.  I don't know how so much time has passed...and I can't believe how much I miss him.  We all do.  He was such a good man and a wonderful dad, and an amazing grandpa.  He fought his personal battles and won with strength and dignity.  Never once in my life, did I doubt his love for me.  I was a daddy's girl.  
Dad worked hard, laughed hard, and gave big hugs with a hard pat on the back.  We are all so thankful for the time we had with him, we mourn the time that is gone, and look forward to the day we meet again.  We love you dad, more than ever.

Sunday, October 3, 2010

Walk to Remember

Today we walked with friends to remember and celebrate their little son who went to heaven before his life on earth could begin.  In fact, we walked with 700 others...all commemorating precious little lives that were over too soon.  It was a beautiful, and bitter sweet experience.  More than once, I had to fight back a lump in my throat as we saw families wearing shirts with their child's picture, or parents lovingly removing leaves and debris from their child's name written in chalk on the sidewalk along the walk route.  Take a minute to be thankful today for the ones you love.
(Walk to Remember Website)

Friday, October 1, 2010

Flash Me Friday

Yup...Friday again!  Check out The Groettum Family Blog to see how Flash Me Friday works.  Today we are flashing "Fall Decor."  I have to say, I am pretty pathetic in my attempt this year.  It has been such a gloomy, cold fall until now.  This is all I have so far... this ugly little fellow below just happened to be out on my patio.  I have not seen one of these around here since I was a little girl...not that I'm complaining.  Eeeeeeeeew.

Have a fabulous weekend!

Wednesday, September 29, 2010

Another Inspiring Story

Take a look at the news video clip below for another inspiring story of people giving of themselves to help fight CF.  So very cool :)

Firefighters climb stairs for CF.

Tuesday, September 28, 2010


You know, I really have to admit something.  Before Carter was diagnosed with Cystic Fibrosis, we were clueless.  We were not only clueless about CF, but clueless about any of the health struggles that other families face.   I guess we had the "it'll never happen to us" mentality that just totally blocks out the heart wrenching desire to help.  We just went about our busy life feeling bad for those with problems, donating to charities here and there of course, but without much compassion.  My husband, Dave, and I have talked about this several times since our journey with CF began.  It actually fills us with shame.  Things have changed so much since then!  If we hear of any health issues with children is tough to keep the tears from flowing for them.  We now feel desire to be involved and make a difference.  When we donate to causes now, we do it because we really feel that it is important and want to help, not because we feel obligated.  Yes, our focus, is on CF. But our hearts are now with every child who has battles to face, that keep them from having the simple life that a child should. It is just so sad that it took us so long to open our hearts.

Now, with all of that said, I really want to tell you about a wonderful person who blessed us this past weekend.  Last May, we participated in our third annual Great Strides walk for CF.  It was an amazing success, with our team doing an outstanding job raising about $24,000!  We were fortunate enough to be able to offer a great prize of a helicopter ride from Delta Helicopters to the two team members who raised the most money.  The two that raised the most, were one of Carter's little friends, Kailey (and her family), as well as a friend from our church, Colleen.  The helicopter ride was scheduled for this past Sunday.  However, when I was trying to arrange the time with Colleen....she turned the tables on us.  She was adament that our son, Carter, should go in her place!  We've come to see what a super special person that Colleen is.  She is constantly helping, constantly giving, and she truely cares from her heart.  Thank you so much Colleen for donating this ride back to our son.  You can see in his face in the pictures below, the joy that it gave him, and for that we are extremely grateful.

My favorite Carter quote from the flight was "Mom, is that the Eiffel Tower?"

Above:  The University of Alberta Hospital where we go often for Carter's CF appointments.

Some people really know how to give!  We are so grateful to our team and for everyone who supports CF, and for everyone who has gone out of their way to give us support.  Thank you once again to Colleen, to the Metlin's, and a huge thank you for the wonderful ride to Delta Helicopters.  You are all the best!

Friday, September 24, 2010

Flash Me Friday

It is Flash Me Friday over at the Groettum Family Blog...
Today, I thought, I'd join in!
This is the view from our kitchen window on our farm near Edmonton, Alberta.

Below is our "Milk House."  My Great Aunts & Uncles that used to live here, built this cute little shed beside our house.  It is just used for storage now, but I often wish I could transform it into a little guest house...
Enjoy your Friday!

Wednesday, September 22, 2010

Bring on the Sun

After a very gloomy first view weeks of September....the sun is shining bright today!  This is such an improvement...I was starting to feel pretty gloomy myself!  It is a glorious first day of Fall.  Carter had a wonderful morning at preschool.  I had a successful shopping trip for myself, and Jace, in preparation for Jace's baptism this weekend.  Jace is now napping.  Carter is outside, smoothing out my flower beds with his trucks, & the hubby is bringing home lunch!  Yes, I am feeling positively positive today.  It is definitely a good one.  ENJOY!

Friday, September 17, 2010

The Dreaded Cold Season

YUP, It is definitely here.  The season that us CF mommies dread like the plague.  Our little son, Jace, picked up a cold....and has been leaking and sneezing/coughing like crazy.  Pretty safe to assume...we are ALL going to get it.  How can one escape it when everything he touches goes in his mouth, and his little fingers touch everything?

So I've been watching Carter...trying to keep him a bit farther away than usual from his impossible task!  We've been washing our hands a lot more.....and if you know us, you're probably thinking "how can you wash more than you already do?"  LOL!  At this point, Carter's been holding up well, although, his nose seems a bit drippy this morning.

Some people think we are being overprotective when we keep Carter from snotty noses, and sneezes etc.  But when Carter gets a cold it is actually a major issue, not to mention a total life interruption.  Not only is his health at risk from a simple cold, but everything gets disrupted.  His treatments usually take about two hours/day when he is healthy.  Well....when he is sick, we do treatments 4-6 times throughout the day and night.  This works out to about 4-5 hours each day.  It gets exhausting very quickly!  But, we have to keep pounding all of that extra mucus out of his lungs to avoid serious infections from settling in.  So I can paddle his little lungs until my arms are ready to fall off and then some, if it means keeping his lungs from infection and damage.
It can take him a long time to recover....& that is really tough for him to not see friends, and to have to miss his weekly classes!  Simple colds are not simple for Carter.  They mean extra treatments, extra medications, extra doctor visits, and lots of extra concern.

So please, now that we are in this dreaded season....
  • wash your hands often
  • cover your coughs/sneezes with your arm
  • don't spread your colds...please stay home!
Everyone will be healthier, and this mom (& CF mommies everywhere!) will be a lot less stressed!

Thursday, September 16, 2010

A Few of my FAVORITE things

I love when you say "I love you mom!" out of the blue
I love how you always 'need' a hug.
I love when you ask to be excused from the table and thank me for the meal.
I love your bright brown eyes.
I love how you always want to be blow-dried after your bath.
I love your total love for Pancakes!

I love your chubby little hands.
I love the twinkle in your eyes when you are about to smile.
I love how you screech when you are excited.
I love (even though I shouldn't) how you suck your little thumb!
I love seeing how much you adore your big brother.
I love your softness.

Just feeling the need to write about the things I'm loving about my little boys today.

Tuesday, September 14, 2010

Sunday, September 12, 2010

Learning to let go...THE BIG DAY!

Well, here it is again!  A totally frightening day for me tomorrow....the first day of a new season of pre-school for Carter.  It nearly kills me to leave him without my vigilent protection (or over-protection...whatever!).  Who else is going to monitor every cough, sniffle, and sneeze in the room...then shuffle him into a corner and cover him with hand sanitizer?
I've packed his supplies....hand sanitizer, enzymes, and water bottle...indoor/outdoor shoes, and clothes are laid out.  We'll need to be up by 6:30 to make it to pre-school for 9am!  That will cover one hour of treatments, breakfast, and getting ready.  Of course, with baby Jace to feed/dress etc, and myself....we should fly out the door just in time....if not frustratingly late!
Carter, on the other hand, is super excited!  He is so blissfully unaware of the concerns that are squeezing my heart tight with tension.  I am thankful for that.  He trusts...simple as that.  I should take a lesson from him...It is so hard to let go! 
As the wise saying goes..."Let go and let GOD"
So, I will be a brave trooper tomorrow...just like my brave little man.

Friday, September 10, 2010

Forever Young

You know, it has really hit me lately...the reality of our son's disease.  Don't get me wrong, he's actually been doing very well this year!  But I can see it.  When he runs around without his shirt on, I can see the effects CF is having on his small body.  From his chest & tummy, to his is there.  At night, when he is asleep, I find myself placing my hands on top of his lungs, and praying for him and his little lungs with all of my might.
Some days, I find myself rushing Carter to get older and looking forward to all that is to come....and then I kick myself!  The older he gets, the greater hold CF will have on him.  I asked him the other day if he could just stay young forever for me.  He said "That is not the way it works mommy...I have to grow!" 

It really is a difficult thing for me to accept. As a mom, I look forward to seeing my children grow and reach for their goals.  But, with Carter,  I just can't help but wish that the future wouldn't come so quickly. 
We need a cure!


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