Friday, March 28, 2014

Your Battle is My Battle




I saw a tattoo on Pinterest and the phrase caught my eye.  "Your battle is my battle."  I thought how well this applies when dealing with Cystic Fibrosis.  Our son's battle with CF is 100% our battle too. We fight CF because we love our sons.  We want Carter to have a full and long life, and for Jace to always have his big brother by his side. We fight for all other families with CF because we know how difficult, how time consuming, and how frightening it is to face such an unpredictable disease.  We fight CF because we can't imagine just sitting back and letting CF win.  Carter is our CF warrior, but it will always be our battle too.

Some of you know that over the last 6 months we have faced our strongest battles with CF yet.  Starting in October, Carter started struggling with his health more than ever before, and it filled my heart with a real fear that I've never known before.  My tears were often hidden after leaving doctor appointment after doctor appointment with frustrating news.  Carter's lung function suddenly dropped to 56% and he was struggling to breathe like never before.  Everything was causing him trouble, from asthma to several viruses and a bad lung infection.  In the past 6 months, Carter has missed over 40 days of school, attended over 20 doctor appointments, had 3-4 hours of treatments daily, and has taken more medications than ever.  I am so happy to report that in the past weeks, Carter seems to be bouncing back to his usual self and we are hopeful that this trend will continue.  He is our inventive little thinker, always ready for a new adventure, and we don't want CF to hold him back.

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As we prepare to participate for our 7th year in the Great Strides Walk for CF, we are very thankful for the strong support that we always receive.  I can't say enough how very important your support is!  Maybe some see this as just another charity asking for money, but your help directly touches our hearts, and directly impacts our son's future.  This means so very much to our family.   There is so much hope on the horizon for more effective treatments that have the potential to make a huge difference!  Your generous support is the only way to make this happen.  Won't you please consider joining us this year...again, or for the first time?  We would be honored and humbled to have your support, and it really is easy to raise a few donations for a very worthy cause.  If you are unable to join us, your donations are greatly appreciated as well. You have the power to help change lives....to help give life. 

Please click on the Great Strides Tab above or HERE to find more info about the walk, and to find our links to sponsor us or to walk with us.  Thanks so very much!



Wednesday, June 12, 2013

Great Strides 2013 THANK YOU!

To Carter's Crew 2013,

Thank you to all of you for your strong support again this year.  Some of you have been with us from the start....6 walks now...for others, this was your first Great Strides Walk!  We were so happy to have all of you with us.  We are not sure of the exact total for our team....but we are almost certain that we broke the $100,000 mark for funds that Carter's Crew has raised for CF since 2008!  That is amazing work team!  It is humbling to have such wonderful people working so hard for us.  Fundraising is difficult, and we are so grateful to those who put so much effort into getting donations and helping us raise awareness for this cause.  Thank you for the personal donations that you made, and for your participation.  Most of all, thank you for helping us FIGHT CF!! 

To all who supported us, or members of our team, with donations:

With so many worthy causes to support, we are so grateful for your help!  Every donation is helping our son, and many like him to have access to better drugs/treatments, and get us closer to a cure.   CF is a lesser known cause, which is why it is so very important to have your support.  With help from kind people like you, we are getting closer to a cure.  Thank you for supporting us, or a member of our team by donating to Cystic Fibrosis.  Thank you for helping us to make a difference!



























Monday, June 10, 2013

Golf for a Cure 2013 Pictures!

Thank you so much to all who came out and supported our 6th Annual Golf for a Cure at Lone Spruce Driving Range on May 11.  It was a fabulous day raising a record amount of over $5000!  We had a lot of fun, and the weather was perfect.  We have great customers at our driving range, and a fantastic group of friends who we would be lost without!
 

Check it out!

The Mini Bake Sale!  YUM!












Thursday, May 23, 2013

Great Strides Walk 2013 Team Details

Hi Carter's Crew 2013!

We are just days away from the big walk!  Thank you for signing up to walk with us once again!  We really appreciate the effort everyone puts in to fundraising and helping us out....we know it is not easy.  Carter's Crew is a bit smaller in numbers this year, but we are inching closer to the $100,000 mark of funds raised since 2008!  That is a great accomplishment, and you guys have been such a big part of that.  Thank you!

Like last year, everyone will be transported by shuttle bus to the park from the Century Park LRT station. ( There is limited parking at the Whitemud park, and you must have a parking pass to park on site.)  If you wish, you are able to drop family members off at the walk, and then go to Century Park to park your vehicle and catch the bus back to the walk site. 

At the park and ride there will be two well marked ETS buses and there will be volunteers to greet you and take you down to Snow Valley.  The buses start running at the Century Park LRT station at 8:30 to 10:00 am and then transporting back to Century Park from 11:30 am  till 1:30 pm. You are welcome to bring your strollers and wagons on the bus as well.

Click HERE for MAP to Century Park LRT station.  It is located at 111 Street and 23 Avenue...where the old Heritage Mall was previously located.
  
Registration is at 9:00 a.m. and the Walk Starts at 10:30 am. You may want to make sure you are on site by 9:30ish to turn in any donations, and pick up your package from us.  Please remember there are no washrooms on the trail, so please go before you head out!  :)


What to bring:
  • Pledge sheets/donations (may want to arrive a little earlier if you have donations to bring in)
  • rain gear if required
  • bug spray/sun lotion  (we will have some, and you can borrow if you like!)
  • comfortable footwear/hat
  • blanket to sit on for lunch (we are throwing in some extra chairs, and some benches are available.)
  • camera
  • Free bottles of water have always been provided in the past, and I am assuming this year will be the same.
What to wear:  We do not have team shirts, so feel free to wear what you like, or wear a shirt from a previous CF walk.  

Where to meet:  When you get off the shuttle bus, please come check in with our team.  We will try to be in the same area as in previous years by the picnic tables...or not too far away.  We will have your tickets for lunches, tickets for goodie bags (under 12yrs), walk maps, stickers etc.  If you can't find us, please give us a call, or send us a text.  Dave:  780-991-5582, or Kim 780-729-5935.

Group Photo:  This is always unpredictable, depending on how the event schedule is organized...but we would like to grab a quick team photo before the walk if possible.  We will try to let everyone know about when/where when you check in with us at the walk.

Pledge sheets:  If you have offline donations and want to turn them in early, please get them to me before Sunday.  We will be there early, and can take care of that part for you if you like.  Otherwise, please make sure you arrive in time to turn them in on walk morning.  You need to have a pledge form for offline donations, with all info filled in correctly.  Please ensure that your donations match the total on your sheet.  Pledge forms can be printed off HERE.

After the walk:  Pick up your lunch, relax, and enjoy the variety of activities that will be happening.  There will be a very short ceremony after the walk.  You are free to leave when you wish, but please come say goodbye so we can say thank you to you in person!

Have I forgotten anything?  If you have any questions, please let us know!

See you Sunday....rain or shine!







Saturday, April 13, 2013

Golf for a Cure 2013 Poster

To print/download, click on the link above each the image.  Then choose the orange print/download button on the right side.  The large poster is 11x17, or can be printed on legal size paper if you change your printer settings.  The smaller flyers use regular size paper.  Let us know if you would like us to deliver some posters/flyers to you.  Thanks for your help!



Thursday, April 11, 2013

Carter's 2013 CF Movie




Special thanks to Song House Records for allowing us to use their song "One Step Closer" from the 'Artist for a Cure' album.  
For more information about Great Strides please click on the Great Strides Walk tab above. (Or view the post previous to this.)

Thursday, March 7, 2013

We Need You!

For 7 years, Carter has been fighting Cystic Fibrosis.  Every year, every month, every day, he has shown us what it means to be strong and courageous.  Carter takes 15-20 pills daily to digest his food.  He spends at least two hours/day inhaling medicines and doing physiotherapy. When he is sick, treatments increase to 4-5 hours/day to help his body fight back to good health.  He deals with frequent doctor visits & tests, has had several sinus surgeries, and has battled some serious lung infections. Carter has to do these things in order to look and feel healthy like other kids, but he has never let it hold him back.

Every year at this time, we ask for your help.  We ask that you help us to raise the very important funds that are needed to help our son have access to better treatments, and bring us closer to a CURE!  A donation of any amount that you are able to give is greatly appreciated to help support Cystic Fibrosis Canada though our team "Carter's Crew" and the Great Strides Walk.  If you don't mind doing a little fundraising, we would love to have you sign up to walk with Carter's Crew.  It is always a fun and inspiring day, and it means so much to us to feel such strong support from our team.  It gives us hope, and encouragement that we are really making a difference for those with CF.  The 2013 walk is happening on May 26 and we are busy getting a team together and planning a few fundraisers.  The links you need for donating or joining 'Carter's Crew' follow below, but you can also always find the info and links under the Great Strides TAB above.

There are amazing drugs on the horizon that would help correct the defect that causes CF!  By supporting CF Canada, you are helping to make new and better treatments available for our son and bringing us closer to our dream of a cure.  We are working hard to ensure that Carter stays as healthy as possible for when that day comes, and we feel the urgency to do all we can to help.  We have so much love for our son, and hope for his future, and we are fiercely fighting for the day when he does not have to work so hard for his health!

To SPONSOR Carter CLICK HERE

To JOIN Carter's Crew CLICK HERE
Some CF Facts: 
  • Of the 40 patients that died in Canada in 2010, half were under 26 years old
  • One in every 3,600 children born in Canada has cystic fibrosis
  • Approximately 4,000 individuals with cystic fibrosis attend one of the 42 specialized cystic fibrosis clinics across Canada
  • One in 25 Canadians carries a defective version of the gene responsible for cystic fibrosis
  • In the 1960’s, most children with cystic fibrosis did not live long enough to attend kindergarten
  • Today, half of all Canadians with cystic fibrosis are expected to live into their 40s and beyond
  • 85% of individuals with cystic fibrosis must take pancreatic enzymes to digest food and absorb nutrients
  • 31% of female adults with cystic fibrosis and 19% of male adults with CF are classified as underweight
  • 44 CF patients received transplants in 2010, more than double compared to a decade ago
 (as taken from the Cystic Fibrosis Canada website )

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